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shamelessly_mkp1863-project:
I put this together for a grad school assignment for, of all things, one of my library science courses (we needed to make a subject guide), so I figured this was a topic I was knowledgeable enough about to do since I have Asperger’s myself.
The resource list can also be found on my Asperger’s blog (Asperger’s Illustrated) here.
Introduction
Herein are collected a number of books, blogs, articles, and websites that pertain to autism and Asperger’s in adults. As this is still a growing field of research because it is only now dawning on people that autism doesn’t magically disappear when we turn 18, I will periodically add on to this list as new resources become available.Why no Autism Speaks?
You will probably notice that Autism Speaks is notably absent from this list. There are plenty of reasons for that - namely that they do not actually support autistic people’s rights, have no autistic people on their board, and are actively trying to find a “cure,” which would mean eradication of autistic people since there is nothing to be cured here. Autism is not a disease, and Autism Speaks’s hateful, propagandist rhetoric is not advocating for us - it seeks to destroy us.Therefore, before we begin in earnest, here are a few resources on why Autism Speaks is not the best organization to support:
So What Is The Problem With Autism Speaks? | The Caffeinated Autistic
Why Autism Speaks Doesn’t Speak For Me | Emily Willingham, Forbes
Why autistic people don’t like Autism Speaks | Marc Rosen, Long Island Autism Examiner
What’s Wrong With Autism Speaks | Ariane Zurcher, Emma’s Hope Book
I resign my roles at Autism Speaks | John Elder Robinson, author of Look Me In The Eye
Books and Print ResourcesLook Me In The Eye
John Elder Robinson
Perhaps the best-known memoir pertaining to growing up with undiagnosed Asperger’s, Look Me In The Eye is a wonderful in-depth look at life with Asperger’s.The Complete Guide to Asperger’s Syndrome
Tony Attwood
Attwood is a clinical psychologist specializing in Asperger’s syndrome, and he actually knows what he’s talking about. He is notably one of the few autism experts who has extensive knowledge of women on the spectrum, which is especially important.Pretending to Be Normal: Living With Asperger’s Syndrome
Liane Holliday Willey
Both Willey and her daughter have Asperger’s, and this memoir comes with an appendix filled with coping strategies and techniques to help those of us with Asperger’s navigate a neurotypical world.Aspergirls: Empowering Females with Asperger’s Syndrome
Rudy Simone
My personal Asperger’s bible - this was the first book I found on the subject that actually sounded like it was about me, as I am very much female (despite my fashion sense and taste in hats). Rudy Simone guides the reader through everything from making friends to going to college - and even helps us meet the partners of our dreams if we’re interested in dating! (I reread those dating chapters a lot since meeting men has always been a personal challenge for me.)Asperger’s and Girls
Tony Attwood, Temple Grandin, et al.
Nine experts in all contributed articles to this book, which is a reliable guidebook for women on the spectrum both as children and as adults. Temple Grandin is a successful autistic woman, and as mentioned above Attwood is a specialist in Asperger’s whose research and work covers females on the spectrum more thoroughly than other experts.The Snow Queen’s Daughter: my life with Asperger’s, a tale from the lost generation
Charli Devnet
Charli and I are co-workers at a historic site in the Hudson Valley (ironically, we always seem to be the two people on duty on the busiest days!) and this list would not be complete without including her new memoir on it. It’s an excellent read about growing up undiagnosed, as many of us females on the spectrum do, and I cannot recommend it enough.Coming Out Asperger: Diagnosis, Disclosure and Self-Confidence
Dinah Murray
Telling people that you’re autistic isn’t always the easiest thing to do, especially given the popular depictions of autism in the media and how they color the perceptions of the general public. This book helps you learn how to disclose to your peers that you’re on the spectrum and also helps you build your self-confidence back up after you’ve been diagnosed. I wish I had this book five years ago when I got my diagnosis, but I didn’t think to look for a book like this!WebsitesAutistic Self Advocacy Networkhttp://ift.tt/VW3q1a
Exactly what it says on the tin. This is the official website for the ASAN, the largest self-advocacy organization for autistic adults (and people who aren’t quite adults yet, too). Resources include links to local chapters, media, and instructions on how to get involved.Autism Women’s Networkhttp://ift.tt/1pQc82G
A phenomenal resource for women on the spectrum and those who care about them. It’s even trans-inclusive, which is also important.AUTCOM - The Autistic National Committeehttp://www.autcom.org/
An organization founded in 1990 to promote social justice for people on the spectrum. AUTCOM is a great place to go for news and events and to help promote social inclusion.Autism Network Internationalhttp://www.autreat.org/
ANI organizes a retreat and conference for autistic people every year called Autreat. It’s by and for autistic people, so it’s especially comfortable and safe for anyone on the spectrum to go! TASH - Equity, Opportunity, and Inclusion for People with Disabilities http://tash.org/
TASH works towards the inclusion of disabled children and adults in their communities and is a great advocate of disability rights and services. ADAPThttp://www.adapt.org/
ADAPT is a grass-roots organization promoting social justice for people with disabilities. It has a list of actions both past and upcoming so if you’re the protesting type you can actively join in. Articles
The WorldCat subject heading ‘Asperger’s syndrome - diagnosis’ is particularly helpful for articles, but many of them are scientific, focus on children, or both. Friendship, loneliness and depression in adolescents with Asperger’s syndrome
Andrew J.O. Whitehouse, K. Durkin, Emma Jaquet, Kathryn Ziatas
Published in Journal of Adolescence, 32 (2), pp. 309-322. Accessible through WorldCat.Real-life-type problem-solving in Asperger’s syndrome
S. Channon, Tony Charman, J. Heap, S. Crawford, P. Rios
Published in Journal of Autism and Developmental Disorders, 31 (5), pp. 461-469. Accessible through WorldCat.The curious incident of novels about Asperger’s syndrome
Bill Greenwell
Published in Children’s Literature in Education 35 (3), pp. 271-284. Accessible through WorldCat.Evidence suggesting the existence of Asperger’s syndrome in the mid-1800s
Ashley Kern Koegel
Published in Journal of Positive Behavior Intentions 10 (4), pp. 270-272. Accessible through WorldCat.Blogs The Caffeinated Autistichttp://ift.tt/1l0bKv9Gretchen Leary | Aspie. Author. Advocatehttp://ift.tt/1l0bL1SLook Me In The Eye: John Elder Robinson’s Bloghttp://ift.tt/1tWdaNoPostcards from the edge of the Spectrumhttp://ift.tt/1l0bL1T
There’s also my blog itself, Asperger’s Illustrated, so never be afraid to ask me to write a post on any topic related to autism! I’ll be glad to answer your questions!
via:Tumblr http://ift.tt/1l0bNa1
I put this together for a grad school assignment for, of all things, one of my library science courses (we needed to make a subject guide), so I figured this was a topic I was knowledgeable enough about to do since I have Asperger’s myself.
The resource list can also be found on my Asperger’s blog (Asperger’s Illustrated) here.
Introduction
Herein are collected a number of books, blogs, articles, and websites that pertain to autism and Asperger’s in adults. As this is still a growing field of research because it is only now dawning on people that autism doesn’t magically disappear when we turn 18, I will periodically add on to this list as new resources become available.Why no Autism Speaks?
You will probably notice that Autism Speaks is notably absent from this list. There are plenty of reasons for that - namely that they do not actually support autistic people’s rights, have no autistic people on their board, and are actively trying to find a “cure,” which would mean eradication of autistic people since there is nothing to be cured here. Autism is not a disease, and Autism Speaks’s hateful, propagandist rhetoric is not advocating for us - it seeks to destroy us.Therefore, before we begin in earnest, here are a few resources on why Autism Speaks is not the best organization to support:
So What Is The Problem With Autism Speaks? | The Caffeinated Autistic
Why Autism Speaks Doesn’t Speak For Me | Emily Willingham, Forbes
Why autistic people don’t like Autism Speaks | Marc Rosen, Long Island Autism Examiner
What’s Wrong With Autism Speaks | Ariane Zurcher, Emma’s Hope Book
I resign my roles at Autism Speaks | John Elder Robinson, author of Look Me In The Eye
Books and Print ResourcesLook Me In The Eye
John Elder Robinson
Perhaps the best-known memoir pertaining to growing up with undiagnosed Asperger’s, Look Me In The Eye is a wonderful in-depth look at life with Asperger’s.The Complete Guide to Asperger’s Syndrome
Tony Attwood
Attwood is a clinical psychologist specializing in Asperger’s syndrome, and he actually knows what he’s talking about. He is notably one of the few autism experts who has extensive knowledge of women on the spectrum, which is especially important.Pretending to Be Normal: Living With Asperger’s Syndrome
Liane Holliday Willey
Both Willey and her daughter have Asperger’s, and this memoir comes with an appendix filled with coping strategies and techniques to help those of us with Asperger’s navigate a neurotypical world.Aspergirls: Empowering Females with Asperger’s Syndrome
Rudy Simone
My personal Asperger’s bible - this was the first book I found on the subject that actually sounded like it was about me, as I am very much female (despite my fashion sense and taste in hats). Rudy Simone guides the reader through everything from making friends to going to college - and even helps us meet the partners of our dreams if we’re interested in dating! (I reread those dating chapters a lot since meeting men has always been a personal challenge for me.)Asperger’s and Girls
Tony Attwood, Temple Grandin, et al.
Nine experts in all contributed articles to this book, which is a reliable guidebook for women on the spectrum both as children and as adults. Temple Grandin is a successful autistic woman, and as mentioned above Attwood is a specialist in Asperger’s whose research and work covers females on the spectrum more thoroughly than other experts.The Snow Queen’s Daughter: my life with Asperger’s, a tale from the lost generation
Charli Devnet
Charli and I are co-workers at a historic site in the Hudson Valley (ironically, we always seem to be the two people on duty on the busiest days!) and this list would not be complete without including her new memoir on it. It’s an excellent read about growing up undiagnosed, as many of us females on the spectrum do, and I cannot recommend it enough.Coming Out Asperger: Diagnosis, Disclosure and Self-Confidence
Dinah Murray
Telling people that you’re autistic isn’t always the easiest thing to do, especially given the popular depictions of autism in the media and how they color the perceptions of the general public. This book helps you learn how to disclose to your peers that you’re on the spectrum and also helps you build your self-confidence back up after you’ve been diagnosed. I wish I had this book five years ago when I got my diagnosis, but I didn’t think to look for a book like this!WebsitesAutistic Self Advocacy Networkhttp://ift.tt/VW3q1a
Exactly what it says on the tin. This is the official website for the ASAN, the largest self-advocacy organization for autistic adults (and people who aren’t quite adults yet, too). Resources include links to local chapters, media, and instructions on how to get involved.Autism Women’s Networkhttp://ift.tt/1pQc82G
A phenomenal resource for women on the spectrum and those who care about them. It’s even trans-inclusive, which is also important.AUTCOM - The Autistic National Committeehttp://www.autcom.org/
An organization founded in 1990 to promote social justice for people on the spectrum. AUTCOM is a great place to go for news and events and to help promote social inclusion.Autism Network Internationalhttp://www.autreat.org/
ANI organizes a retreat and conference for autistic people every year called Autreat. It’s by and for autistic people, so it’s especially comfortable and safe for anyone on the spectrum to go! TASH - Equity, Opportunity, and Inclusion for People with Disabilities http://tash.org/
TASH works towards the inclusion of disabled children and adults in their communities and is a great advocate of disability rights and services. ADAPThttp://www.adapt.org/
ADAPT is a grass-roots organization promoting social justice for people with disabilities. It has a list of actions both past and upcoming so if you’re the protesting type you can actively join in. Articles
The WorldCat subject heading ‘Asperger’s syndrome - diagnosis’ is particularly helpful for articles, but many of them are scientific, focus on children, or both. Friendship, loneliness and depression in adolescents with Asperger’s syndrome
Andrew J.O. Whitehouse, K. Durkin, Emma Jaquet, Kathryn Ziatas
Published in Journal of Adolescence, 32 (2), pp. 309-322. Accessible through WorldCat.Real-life-type problem-solving in Asperger’s syndrome
S. Channon, Tony Charman, J. Heap, S. Crawford, P. Rios
Published in Journal of Autism and Developmental Disorders, 31 (5), pp. 461-469. Accessible through WorldCat.The curious incident of novels about Asperger’s syndrome
Bill Greenwell
Published in Children’s Literature in Education 35 (3), pp. 271-284. Accessible through WorldCat.Evidence suggesting the existence of Asperger’s syndrome in the mid-1800s
Ashley Kern Koegel
Published in Journal of Positive Behavior Intentions 10 (4), pp. 270-272. Accessible through WorldCat.Blogs The Caffeinated Autistichttp://ift.tt/1l0bKv9Gretchen Leary | Aspie. Author. Advocatehttp://ift.tt/1l0bL1SLook Me In The Eye: John Elder Robinson’s Bloghttp://ift.tt/1tWdaNoPostcards from the edge of the Spectrumhttp://ift.tt/1l0bL1T
There’s also my blog itself, Asperger’s Illustrated, so never be afraid to ask me to write a post on any topic related to autism! I’ll be glad to answer your questions!
via:Tumblr http://ift.tt/1l0bNa1
